In past years, OCRFA has convened an expert roundtable discussion in Washington, DC, to discuss the top issues facing the ovarian cancer community and to craft policy solutions. Attendees of this innovative roundtable series include survivors, primary care providers, gynecologic and medical oncologists, oncology nursing professionals, public and private payers, researchers, public policy professionals, industry and federal government partners. Through facilitated discussion and creation of action items, Advocate Conversation is helping the ovarian cancer community improve the lives and treatment of women with ovarian cancer. Conversations in 2014 led to the development of the care continuum that formed the foundation of 50 States of Teal report cards released in 2015. Check back for a summary of discussions to be held in 2016!
Past Advocate Conversations addressed a different policy topic each year.
In 2014, Advocate Conversations focused on defining the full continuum of care necessary for women with or at risk of developing ovarian cancer. Participants then identified the barriers to women receiving this care and brainstormed policy solutions to remove these barriers. Download our white paper from 2014.
In 2013, the roundtable tackled critical issues in ovarian cancer care including how to ensure that women receive standard-of-care upfront treatment for ovarian cancer, ways to increase participation in ovarian cancer clinical trials, and the possible role for patient advocates in navigating an increasing number of ovarian cancer registries. Download our white paper from the 2013 Advocate Conversations.
In 2012, the conversation focused on three of the most challenging topics facing the ovarian cancer community – patient reported outcomes (PROs), access to clinical trials at the community level and personalized medicine – and identified key problems, opportunities and recommendations for each. Download our white paper from the 2012 Advocate Conversations.