See what’s in store for our weekend of information and inspiration. Agenda is tentative and subject to change. View a print-friendly version here.

Friday, July 13, 2018

4:30 PM–6:30 PM
Attendee and Exhibitor Registration Open
REGENCY FOYER

5:00 PM–6:00 PM
Newcomers Welcome Reception
CAPITOL ROOM A
Is this your first National Conference? Come join other first time attendees and OCRFA staff to connect in a friendly atmosphere.
SPONSORED BY: Genentech Inc.

5:00 PM–6:00 PM
Community Partners Welcome Reception
CAPITOL ROOM B
Meet your colleagues from across the country who are working with us to save women’s lives. This is a great opportunity to network with other Community Partner organizations.
SPONSORED BY: Clovis Oncology

Saturday, July 14, 2018

7:15 AM–8:00 AM
Gentle Yoga Class
THORNTON ROOM, 11TH FLOOR
OCRFA Advocate Leader and yoga teacher, Bridget Toomey, will lead this gentle class, which will end with a soothing gong bath—a sound massage for the body and mind! No experience or special equipment necessary.
LED BY: Bridget Toomey

7:30 AM–8:30 AM
Breakfast
REGENCY BALLROOM A
Start the day off with a healthy breakfast, and visit with our Exhibitors.

7:30 AM–8:30 AM
Survivors Teaching Students: Saving Women’s Lives® Breakfast (for Survivors Teaching Students volunteers only)
LEXINGTON/CONCORD
Join fellow volunteers for updates from National Program Director, Susan Leighton, and participate in an open discussion.
SPONSORED BY: EMD Serono/ Pfizer
SPEAKER: Susan Leighton, MA, National Program Director, Survivors Teaching Students®, Ovarian Cancer Research Fund Alliance

8:45 AM–9:45 AM
Opening Ceremony
REGENCY BALLROOM BCD
Welcome to the 21st Ovarian Cancer National Conference! Join us to kick off this inspirational weekend as we recognize leaders in the community, announce our 2018 research and leadership awards, and share what’s new at Ovarian Cancer Research Fund Alliance.
SPONSORED BY: TESARO
SPEAKER: Audra Moran, President & CEO, Ovarian Cancer Research Fund Alliance

9:45 AM–10:00 AM
Break

10:00 AM–11:00 AM
Mello Abrams Lecture: New Treatments for Ovarian Cancer
REGENCY BALLROOM BCD
It’s an incredibly exciting time for ovarian cancer research! Learn from renowned ovarian cancer expert Dr. Ursula Matulonis what’s new and on the horizon for the treatment of ovarian cancer.
SPONSORED BY: TESARO
INTRODUCED BY: Judy Abrams, OCRFA Leadership Council, President Emerita, Ovarian Cancer National Alliance
SPEAKER: Ursula Matulonis, MD, Director and Chief, Division of Gynecologic Oncology, Dana-Farber Cancer Institute

11:15 AM–12:15 PM
BREAKOUTS

Newly Diagnosed: Ovarian Cancer 101
LEXINGTON/CONCORD
If you’ve recently been diagnosed with ovarian cancer, it’s normal to have lots of questions. Learn more about the basics of the disease and what to expect in treatment and survivorship.
SPONSORED BY: Clovis Oncology
SPEAKER: Teresa P. Diaz-Montes, MD, MPH, FACOG, Associate Director, Lya Segall Ovarian Cancer Institute, Mercy Medical Center

Navigating the Health Insurance System
COLUMBIA C
Health insurance coverage, denials, appeals—it’s a maze! Join expert Tina Segura to learn how to navigate the system.
SPONSORED BY: Genentech Inc.
SPEAKER: Tina Segura, Esq., Staff Attorney, Disability Rights Legal Center

Integrative Medicine for Ovarian Cancer
COLUMBIA A
Join Dr. Shelly Latte-Naor for a conversation about the beneficial role of evidence-based integrative medicine in ovarian cancer treatment, including yoga, massage and acupuncture.
SPONSORED BY: EMD Serono/ Pfizer
SPEAKER: Shelly Latte-Naor, MD, Assistant Attending Physician, Memorial Sloan Kettering Cancer Center

All About PARP Inhibitors
COLUMBIA B
The ovarian cancer community is abuzz with news about PARP inhibitors. Find out what you need to know with expert Dr. Ursula Matulonis.
SPONSORED BY: AstraZeneca, Clovis Oncology, and TESARO
SPEAKER: Ursula Matulonis, MD, Director and Chief, Division of Gynecologic Oncology, Dana-Farber Cancer Institute

12:30 PM–1:45 PM
Networking Lunch
REGENCY BALLROOM A
Refuel and relax while you meet others in your ovarian cancer community. Look for special tables marked for caregivers, young survivors, newly diagnosed, long-term survivors and for men only.

2:00 PM–3:00 PM
Ovarian Cancer Dream Team: Where are We?
REGENCY BALLROOM BCD
Hear the latest on the Ovarian Cancer Dream Team’s cutting-edge research on ovarian cancer prevention and treatment from the Dream Team’s co-leader, Dr. Alan D’Andrea.
SPONSORED BY: Gail Baird Foundation
SPEAKER: Alan D. D’Andrea, MD, Director, Susan F. Smith Center for Women’s Cancers, Dana-Farber Cancer Institute

3:30 PM–4:30 PM
BREAKOUTS

Advocacy at Home: Taking Action in Your State
COLUMBIA A
Want to make an immediate impact on legislation affecting the ovarian cancer community? This session may be for you. Come learn how to do policy advocacy at the state level and leave armed with model legislation.
SPEAKERS: Chad Ramsey, Vice President, Policy, Ovarian Cancer Research Fund Alliance
Vanessa Cramer, Associate Director, Policy, Ovarian Cancer Research Fund Alliance

Too Young for This! Facing Cancer Under 40
COLUMBIA C
Hear strategies for dealing with the unique set of challenges younger women face when diagnosed with ovarian cancer.
SPONSORED BY: Gail Baird Foundation
SPEAKER: Erin Price, MSW, LGSW, Navigation Programs Manager, Smith Center for Healing and the Arts

For Community Partners: Best Practices (for Community Partners only)
LEXINGTON/CONCORD
Share tips and strategies with your colleagues from other ovarian cancer organizations, while getting expert tips on best practices in organizational leadership.
SPEAKER: Glen O’Gilvie, Chief Executive Oficer, Center for Nonprofit Advancement

Managing Recurrence
COLUMBIA B
Recurrence is in the back of every ovarian cancer survivor’s mind. Join Dr. Sarah Adams for a presentation and discussion about the diagnosis and management of recurrent ovarian cancer.
SPONSORED BY: TESARO
SPEAKER: Sarah Adams, MD, Associate Professor, Gynecologic Oncology, University of New Mexico

5:45 PM–8:00 PM
The TEAL Takeover Party
REGENCY BALLROOM BCD
It’s a party to celebrate you! Join us for food, music, dancing and lots of fun and laughter. Break out the teal costumes and dress up for the annual “Wear Your Best Teal” contest, and a chance to win free registration for the 2019 National Conference!

Sunday, July 15, 2018

7:15 AM–8:00 AM
Gentle Yoga Class
THORNTON ROOM, 11TH FLOOR
OCRFA Advocate Leader and yoga teacher, Bridget Toomey, will lead this gentle class, which will end with a soothing gong bath—a sound massage for the body and mind! No experience or special equipment necessary.
LED BY: Bridget Toomey

7:30 AM–8:30 AM
Breakfast
REGENCY BALLROOM A
Start the day off with a healthy breakfast, and visit with our Exhibitors.

9:00 AM–10:30 AM
Ask the Experts
REGENCY BALLROOM BCD
Our panel of experts from some of the country’s top institutions will answer your questions about ovarian cancer research, science, and clinical trials. You may submit questions in advance at the registration desk.
PLEASE NOTE: The experts cannot answer specific questions about your treatment. Please speak with your healthcare team about your personal health questions.
SPONSORED BY: Genentech Inc.
SPEAKERS: Susan C. Modesitt, MD, Director of the Gynecologic Oncology Division and Director of the High Risk Breast/Ovarian Cancer Clinic, University of Virginia
Amanda Nickles Fader, Associate Professor and Director of the Kelly Gynecologic Oncology Service in the Johns Hopkins Department of Gynecology and Obstetrics
Anil Sood, MD, Professor, University of Texas MD Anderson Cancer Center

10:30 AM–11:00 AM
BREAK

11:00 AM–12:00 PM
BREAKOUTS

Caring for the Caregiver
LEXINGTON
Join Mark Gibbons from the Caregiver Action Network to learn about resources for caregivers and taking care of yourself while caring for a loved one.
SPONSORED BY: Gail Baird Foundation
SPEAKER: Mark Gibbons, Senior Director of External Programs, Caregiver Action Network

Rare Ovarian Cancers
COLUMBIA A
Join expert Dr. Amanda Nickles Fader for a discussion focused on new research and treatment of rare types of ovarian cancer.
SPONSORED BY: Clovis Oncology
SPEAKER: Amanda Nickles Fader, Associate Professor and Director of the Kelly Gynecologic Oncology Service in the Johns Hopkins Department of Gynecology and Obstetrics

Policy Update: Drug Pricing
CONCORD
The cost of drugs continues to rise but there appear to be some real efforts underway to address the issue. Join us as we discuss the current landscape and how reform efforts might impact the cost of crucial therapies.
SPONSORED BY: AstraZeneca
SPEAKERS: Chad Ramsey, Vice President, Policy, Ovarian Cancer Research Fund Alliance
Vanessa Cramer, Associate Director, Policy, Ovarian Cancer Research Fund Alliance

Genetics and Hereditary Ovarian Cancer
COLUMBIA B
What role do genetics and family history play in ovarian cancer? Recent studies have shown the important role our genetic makeup plays in the diagnosis and treatment of ovarian cancer. Dr. Modesitt tells you what you need to know.
SPONSORED BY: Myriad Genetics Inc.
SPEAKER: Susan C. Modesitt, MD, Director of the Gynecologic Oncology Division and Director of the High Risk Breast/Ovarian Cancer clinic, University of Virginia

Racial Health Disparities in Ovarian Cancer
COLUMBIA C
What factors contribute to the disparities in outcomes for women of color with ovarian cancer, and what can we do about it? Join Dr. Temkin for an informative discussion.
SPEAKER: Sarah Temkin, MD, Division Director, Virginia Commonwealth University

12:00 PM–1:15 PM
Networking Lunch
REGENCY BALLROOM A
Refuel, relax and meet new friends. Look for tables marked by geographic region to find other women who live near you!

1:30 PM–2:30 PM
Clinical Trials: What You Need to Know
REGENCY BALLROOM BCD
Clinical trials are a critical way to advance the science of ovarian cancer research. They can also be intimidating! Dr. Elise Kohn will demystify clinical trials and discuss what’s new.
SPONSORED BY: AstraZeneca
SPEAKER: Elise C. Kohn, MD, Head, Gynecologic Cancer Therapeutics, National Cancer Institute

2:45 PM–3:45 PM
BREAKOUTS

For Men Only
CONCORD
Stop by and informally share with other men who understand what you’re going through.
SPEAKER: Mark Gibbons, Senior Director of External Programs, Caregiver Action Network

Doctor-Patient Communication
LEXINGTON
Join a discussion with experts from the Cleveland Clinic to learn about the elements of productive interactions between patients and their care team.
SPONSORED BY: AstraZeneca
SPEAKERS: Gretchen Fisher, MD, Staff OB/GYN and Patient Experience Oficer, Cleveland Clinic
Carol Santalucia, MBA, Director, Service Excellence and Culture, Cleveland Clinic

Sexual Health after Cancer (for survivors only)
COLUMBIA C
Join Dr. Saketh Guntupalli, author of “Sex and Cancer: Love, Intimacy and Romance After Diagnosis,” for a discussion of the common sexual problems survivors face, their causes and solutions.
SPEAKER: Saketh R. Guntupalli, MD, Associate Professor, University of Colorado School of Medicine at Denver

Long-term Survivorship
COLUMBIA A
What do we know about the factors that contribute to long-term survivorship? Join Dr. Leigh Pearce to find out what the latest research shows.
SPONSORED BY: TESARO
SPEAKER: Leigh Pearce, PhD, MPH, Associate Professor, University of Michigan

Get Involved! Ways to Engage with Your Ovarian Cancer Community
COLUMBIA B
Feeling inspired this weekend? Hear from survivors about the many different ways you can stay involved in your community. Educate others, lend your voice, speak out, and fundraise for the cause!
SPEAKERS: Audra Moran, President & CEO, Ovarian Cancer Research Fund Alliance
Susan Leighton, MA, National Program Director, Survivors Teaching Students, Ovarian Cancer Research Fund Alliance
Laura Forte, Ovarian Cancer Research Fund Alliance Advocate Leader

4:00 PM–5:00 PM
Closing Session: What’s Next?
REGENCY BALLROOM BCD
Join us for a fun and inspirational end to an amazing weekend!
SPONSORED BY: TESARO
SPEAKER: Audra Moran, President & CEO, Ovarian Cancer Research Fund Alliance

5:30 PM–7:30 PM
Advocacy Day Training
COLUMBIA B
This training is MANDATORY for all Advocacy Day participants. Open only to Advocacy Day registrants. Learn which policy issues are priorities for the ovarian cancer community in 2018. Prepare for your meetings with Congressional staffers by practicing key messages and meeting your fellow advocates. Light snacks and beverages will be available.
SPEAKER: Jeremy Scott, Senior Vice President, The District Policy Group
Chad Ramsey, Vice President, Policy, Ovarian Cancer Research Fund Alliance
Vanessa Cramer, Associate Director, Policy, Ovarian Cancer Research Fund Alliance

Monday, July 16, 2018

8:00 AM–10:00 AM
Advocacy Day Breakfast
REGENCY A BALLROOM
Before your big day on Capitol Hill, meet here to join your fellow advocates, and fuel up with a healthy breakfast!

2:00 PM–4:00 PM
Advocacy Day Shoutback
OLYMPIC BOARD ROOM
Come back after your meetings on the Hill and share your experiences! This is optional for Advocacy Day attendees.