As a young woman who has been diagnosed with a cancer that typically affects women 55 years of age and older, resources may seem limited. However, there are several support groups and websites for young adults diagnosed with all types of cancers. There are many similarities between the different types of cancers that affect young adults.

These organizations can be a good resource for support:

Cancer – Young Adult

  • Cancer.Net is a web site established by the American Society of Clinical Oncology (ASCO) and the Conquer Cancer Foundation with evidence based information about cancer. There is a section specifically for young adults battling cancer.
  • Critical Mass is a coalition of nonprofits, medical institutions, patient advocacy groups, government agencies, doctors and researchers who are working together to move the needle on adolescent and young adult cancer treatment. Mission Control is an online tool where you can find local resources specific to your needs.
  • Stupid Cancer is a nonprofit organization focuses specifically on the needs of adolescents and young adults with cancer. Stupid Cancer has a complete list of financial resources for cancer patients on their web site.

Cancer – General

  • Chemocare provides information on various chemo drugs and side effects.
  • National Coalition for Cancer Survivorship (NCCN) advocates for quality access and care for cancer patients. NCCN regularly releases a set of guidelines for the medical community on cancer care and survivorship.
  • NCI Designated Cancer Center – The National Cancer Institute (NCI) has set standards for many cancer centers across the country. An NCI Designated Cancer Center follows strict guidelines for laboratory, clinical and behavioral and population based research. There are 69 Designated Cancer Centers in the US.
  • The Foundation for Women’s Cancer is a non profit that provides helpful information for all gynecologic disease. There is a tool available on their web site to help you find a gynecologic oncologist in your area.
  • Ovarian Cancer Research Fund Alliance has a network of Community Partners all across the country who provide support and assistance to ovarian cancer patients in their communities.
  • The Patient Advocate Foundation is a national nonprofit providing case management services to individuals with chronic illness. They can assist with insurance issues, employer concerns and more.

Cancer and Fertility/Sexuality

Cancer and Work

  • ADA.gov provides information and technical assistance for individuals with questions relating the Americans with Disabilities Act – the legislation that prohibits employers from discriminating against you based on your medical condition.
  • Cancer and Careers is a national nonprofit that provides assistance and guidance for cancer patients in the workforce including information on understanding your rights, career advice and support.
  • The Cancer Legal Resource Center is a part of the Disability Rights Legal Center and provides assistance and information about your legal rights through education programs and telephone assistance.
  • Equal Employment Opportunity Commission is a federal agency that enforces laws that prevent workplace discrimination based on, among other things, disability including cancer related illnesses. Genetic Information Nondiscrimination Act information.
  • National Women’s Law Center is dedicating to helping achieve policies that affect women throughout their lives and advocating for women who are being discriminated against.
  • The US Department of Labor is responsible for all labor related policy and provides information on disability resources.

Cancer and Insurance

  • The Cancer Insurance Checklist is an online tool you can use to compare different insurance plans in the federally funded Marketplace. (In English and Spanish)
  • Healthcare.gov is the website where you can research different insurance plans in your state to find the best fit for you and sign up during open enrollment or a Special Enrollment Period.
  • National Patient Advocate Foundation is an organization that represents the patient’s voice nationwide, particularly those struggling with a chronic, debilitating or life-threatening illness.

Clinical Trials

  • Clinicaltrials.gov is run by the US National Institutes of Health and provides a registry and database of clinical trials around the world.
  • Cure Forward is a platform that was created to connect patients with genomic medicine, bringing the possibilities of precision medicine directly in reach.
  • EmergingMed is a clinical trials matching service.

Support

  • American Academy of Medical Acupuncture is a collaboration of doctors who incorporate acupuncture into their practices. This website has information on the benefits of acupuncture and can help you find a local provider.
  • American Music Therapy Association provides information on the benefits of music therapy.
  • CancerCare provides a variety of support services for cancer patients and their caregivers.
  • CaringBridge.org is a non-profit where you can create a personalized web site to share updates with your friends and family. The site allows you to keep a journal to share updates, create a planner to coordinate help from your friends, post photos and find encouragement.
  • MyLifeLine.org is similar to CaringBridge in that it provides free websites for you to share information with your friends and family. MyLifeLine.org is specific to cancer patients. In addition to creating your own web site, you can also find helpful cancer related resources.
  • The National Center for Complementary and Alternative Medicine at the National Cancer Institute provides research, information and resources on complementary therapies.